KIHMI PROJECTS

Equips and empowers rural teens who are affected directly or indirectly by rare diseases, to identify and design local social solutions aligned with the United Nations Sustainable Development Goals using our Do No Harm for Development methodology. The teens are coached from idea through implementation.  Solutions that are implemented may result in the establishment of small businesses in their community. We accomplish this through industry and business mentorship, and business development and marketplace literacy training.

Increases skills of teachers in rural communities, where families with rare diseases live, through inquiry based methodology and training to improve the classroom experience. This training reduces the harm and isolation the students encounter from the stigma of the disease. Education becomes fun and the classroom a haven where the students belong and find the value in learning.

Establishes a community cohort of women caregivers to develop innovative and sustainable apparel and fashion entrepreneurs. This space provides opportunities for the caregivers to experience a creative outlet separate from their role as a caregiver. They can gather with like-minded women to learn pattern making, textile and fabric manipulation, and measurement techniques to solve fashion dilemmas associated with patients affected by disabilities from rare diseases.

Improves the socioeconomic conditions and community involvement of families directly affected by rare diseases and disabilities through vertical home gardens, nutritional education, artisan farming techniques, and recycling of local resources.  Members of each household are united in the planting process to grow nutritional and healthy produce that they can share, trade, and sell, opening up opportunities to connect and strengthen their value in the community.

Educates local and regional healthcare workers, medical facilities, and public offices about the symptoms and progression of rare diseases present in the communities where we serve (currently, our main focus is Huntington’s Disease).  This is important to eliminate the misinformation that results in exclusion, misdiagnosis, and harmful interventions.   We work as a bridge between the health system and the community to improve communications between the various public offices and the patients. We develop projects that gather social data to assist in the improvement of local public policies, registration of patients in the National Database for Rare Diseases, and assist them in obtaining a Certificate of Disability.  Each of these steps allows the patients to receive health benefits and treatment that is covered under the national health care system.

Invests in children ages 6-12 years who are impacted directly or indirectly by rare diseases. We focus on teaching soft skills proposed by the World Health Organization (WHO) with the goal of diminishing social exclusion. The children are encouraged to explore specific soft skills through interactive and innovative workbooks and activities, improving internal relationships within the family as they share and implement these newly acquired concepts in their home.  The activities create a safe place for families to learn healthy coping skills and unpack the day to day challenges that each family has to deal with due to the disease.